Blemon Explains Huntington's Disease

Huntington's disease can be hard for grown-ups to understand-so how do we explain it to a child?

Blemon Explains Huntington's Disease helps make those big, complicated words a little easier.

Join Blemon and his little buddy Greg as they gently explore what Huntington's disease (HD) and Juvenile Huntington's disease (JHD) can look like. Through colorful illustrations and simple, kid-friendly explanations, children learn about changes in movement, thinking, talking, swallowing, feelings, energy, walking, and more.

But Blemon has an even more important message to share:

HD may change some things, but it does not change who someone is.

Their hugs still matter.
Their favorite things still matter.
Their feelings still matter.
And they are still the same amazing person they have always been.

Created especially for children who love someone affected by HD or JHD, this book encourages questions, patience, kindness, inclusion, and understanding while reminding children that they are not alone.

Different people. Same amazing world.

Written by Melanie Evans, mom, caregiver, advocate, and creator of Greg's Rubber Ducky Quest: A Juvenile Huntington's Journey.